Wednesday, January 23, 2013

“When you get to the end of your rope. Tie a knot and hang on.” ― Franklin D. Roosevelt

I have been MIA on my blog for quite some time I suppose it's because after my last cycle of injections not much changed and I really didn't feel like writing about the disappointment I felt at that time. I guess I have plateued in my progress, which in no way means I do not recognize the blessing of how far I have come from my diagnosis date. My frustration lye's in the fact that now I am forced to maintain my progress with medications that I would give anything to have out of my system but that is just NOT an option. My meds are my survival they are holding me together and give me some sence of normalcy. If I am being honest the progress I have made is not enough either!! I am still not my former self, I am coping but unwilling to give up on the idea that I will have  all my abilities back at some point which is why we need a CURE and we need it NOW!! It breaks my heart to know there so many suffering worse than myself and that so many are children. 

RSD hasn't given me only negatives there have been many positives and blessings along the way. I have made friends through support groups throughout the country and one friend from the UK who is actually coming to visit this year...us RSDers need to stick together! It's a long road ahead and we must conquer it with grace and confidence that we still matter even if we are not who we once were. My husband melts my heart when he says you are brave and beautiful and I can see in his eyes he truly means it. He has no idea how that lifts me up, he is my biggest supporter and RSD has shown me that he will be by my side no matter what!




"The secret of learning to be sick is this: Illness doesn't make you less of what you were. You are still you." Tony Snow


http://www.youtube.com/watch?v=LB1xYuzxrkQ