Tuesday, September 18, 2012

Bring on round two!



Bring on round two…I just hope I don’t chicken out! The good news is the injection last week went well with no negative reaction, the bad news  I have to go at least three rounds to know if it will bring relief. After three I hope to notice positive changes …if I do we go a total of five. I hoped that knowing what to expect at the procedure this week would give me less anxiety however compared to last week’s appointment going in blind I definitely have more anxiety this morning knowing what I am in for. I know I sound like a baby, heck I feel like one but I am just being honest!

I will take any positive vibes and prayer I can get today! As always thank you so much for all the love and support. xo

Tuesday, September 11, 2012

“Anything is possible if you are willing to do what it takes to get there!”



So, it’s been awhile since I have had anything to report and since “A day in the life of RSD/CRPS” is kind of like groundhogs day, I would not want to bore anyone with what I might like to go on about. I am constantly working on improving my condition and what that boils down to is

A) Move as much as I can
B) Move whenever I can 
C) Never get too down on myself when things are really tough.

Since treatment options are few and far between, it mostly comes down to management. I also don’t want to go crazy trying every experimental treatment and basically becoming a lab rat (which is really what RSD/CRPS patients are). I like to take my time weighing all my options before moving forward with anything, which brings us to why I am updating at this time.

Today I begin another series of treatments that are considered a new and natural approach to pain… Biopuncture.

Biopuncture, recently featured on the Dr. Oz show, is a new technique utilized by physicians for pain management. It’s an injection technique utilizing homeopathic medicines to stimulate the natural self-healing abilities of the body.  Sounds simple enough right??? Well, when you have been through what I have been through the last 2 ½ years, you would understand why the thought of needles getting anywhere near my feet would be in one word ” terrifying.” (And it is!!)  I am trying to mentally buck up for today’s events and remind myself that I can’t be afraid to try something that could possibly help me regain all the things I have lost. I have come a long way but still have so much more to go. Therefore I could use any and all prayer and positive vibes that today will go well, and that I can complete all 5 weeks of treatments and find some relief along the way.
 
For anyone interested in watching the Doctor Oz segments the links are provided below and each play about 5mins long:



I have been so blessed to have all the wonderful support a girl could ever ask for, so a BIG thank you goes out to everyone who has stood by my side since the beginning of my RSD/CRPS journey. Hope everyone has a beautiful day!

Thursday, May 31, 2012

Be Positive, patient and PERSISTENT


Be Positive, patient and PERSISTENT

Be POSITIVE.    I really think that statement alone says a lot about my everyday life with RSD/CRPS. My goal to be positive stems from the mind/body connection and is bigger than I will ever realize. RSD stress is almost always accompanied with negative thoughts can really effect the progression of the disease.

Be PATIENT.   Although every day I hope and pray it will be my last day living this nightmare, I know the reality is, there is no cure. I cannot even begin to explain how hard that one is to except, so I frequently hope and pray for a miracle.

Be PERSISTENT.    Persistence with my Physical Therapy and search for pain relief is my biggest hope for the best possible outcome for my future. And just in case you all didn't know I have BIG plans for my future and one plan includes beating this and never, ever giving up!

So as I head to the doctors today for yet another procedure (that I am nervous about) and for the hope of some pain relief, I ask that you say a little prayer for me that A) The procedure itself isn't too painful and B) That it is successful in relieving some if not all the pain in my right foot.  Of course if it works we do the left foot next. It's a long shot, but like I said...be PERSISTENT and never ever give up!

Tuesday, March 20, 2012

The gift of hope for healing

Well, times haven't changed to much here in the life and times of an RSDer. We are still taking it one day at a time and still hold out for hope, which today we were given the gift of some new hope. Not naming names however some very thoughtful and caring friends have given us the gift of a new treatment option. We feel beyond blessed to say the least. Next Monday I will start a two week journey with Dr. Fliss at Fliss Laser and Chiropractic.

I will be receiving spinal adjustments daily and Cold Laser Therapy both of which could be very beneficial for several reasons...

A spinal adjustment improves mobility and nerve function throughout the entire body. A healthy nervous system controls every aspect of your body. Our patients not only feel better, but also the improved autonomic nervous system effect regulates circulation to all muscles and tissues as well as directly improves organ function throughout the entire body.

Cold Laser therapy applied with adjusting is extremely beneficial and helps your injuries heal, rather than just masking the pain. Laser therapy gently gives patients a more effective, comfortable, longer lasting benefit from chiropractic treatment. Patients benefit from reduced pain and inflammation, increased range of motion and enhanced tissue repair.

We of course always pray for complete healing but we would also be thrilled with less pain with less medications!
Again thank you to our friends who have set me up with these appointments and for giving us renewed sense of hope!

Wednesday, January 18, 2012

Back to the begining...

So we are going for a long shot over the next two weeks. We are going back to earlier treatments to see if my body will respond positively. Today and the following Wednesday I am going back to the surgery center for two more sympathetic nerve blocks to both legs.

My doctor decide at this point my options are slim and it is worth a shot. I am willing to attempt anything that isn't to terribly invasive and is at least recognized as a treatment by my insurance. So the hope is relief in both legs and if at all possible a complete miracle that my body will see these blocks as if a reset button has been pushed and my body will once and for all go back to functioning the way it is intended to. Not likely, but I will not stop fighting or praying for complete HEALING!!

Thank you to everyone who has continued to be there for me, it helps more than you could ever know!



"You have to decide if you're going to wilt like a daisy or if you're just going to go forward and live the life that you've been granted." Kevin Costner